Related Links
Do you know what the
Spina Bifida Association’s branded color is?
It is TEAL (PMS320).
It is the green/blue color.
Help organize family
and friends to wear
teal and start getting people to recognize our organization's color.
Related Links
International Spina Bifida Links
International Federation for Spina Bifida and Hydrocephalus
National Spina Bifida Links
Spina Bifida Association's mission is to promote the prevention of Spina Bifida and to enhance the lives of all affected.
Spina Bifida Association Fact Sheets Developed as part of the SBA National Resource Center (NRC), these fact sheets provide in depth information on health and interest topics related to Spina Bifida.
The Spina Bifida Research Resource The SBRR is a project, funded by the National Institutes of Health, to study the causes of Spina Bifida and anencephaly. To succeed, this project requires a partnership between scientists and families.
National Council on Folic Acid works to improve health by promoting the benefits and consumption of folic acid.
National Center on Birth Defects and Developmental Disabilities within the Centers for Disease Control and Prevention promotes the health of babies, children, and adults, and enhances the potential for full, productive living. The NCBDDD's work includes identifying the causes of birth defects and developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities.
The Museum of Disability This website is presented by People, Inc., a non-profit human service agency serving people with special needs, seniors, and their families in Western New York. The website contains virtual exhibits documenting various aspects of the history of individuals with disabilities, as well as an extensive bibliography.
Jean Driscoll is a world-renowned athlete who was born with Spina Bifida. Her motto is "Dream BIG and Work Hard." This Web site tells of her amazing successes as an Olympian, Paralympian, motivational speaker, corporate spokeswoman, author and professional athlete.
Wisconsin Links
Access to Independence (Madison area) and IndependenceFirst (Milwaukee area) are independence living centers dedicated to assisting persons with disabilities to be independent. For the independent living center serving your area click here.
Arc-Wisconsin is an organization that promotes the quality of life for people with developmental and related disabilities and their families.
Bridges4Kids contains information for parents and teachers. Some of the information included is state government information, statewide organizations for individuals with disabilities, and information on Wisconsin Early Childhood programs.
DAWN is a statewide grassroots cross-disability network of people who care about disability issues. DAWN supports legislative change in the programs and systems affecting people with all disabilities. DAWN focuses on the most important issues affecting all people with disabilities. It includes people with disabilities, family members, friends, service providers and others who are committed to enhancing the lives of people with disabilities. The Wisconsin Council on Developmental Disabilities funds DAWN as part of the State Plan on Developmental Disabilities.
Kerry Hills Farm near Oconomowoc, WI, makes a line of therapeutic wool bedding which may help in the prevention or healing of bed sores and ulcers. SBAWI is not promoting this product, but thought to pass along the information in hopes that it is helpful to you. If you have used any of these products let us know. We'd like to hear how they have worked for you, and then we'll pass along your feedback to others who are considering a purchase.
Milwaukee Moms is a great site full of information and fun ideas for the whole family. There are photo contests, discussion groups, ideas for outings, and movie reviews! The site also includes a parks directory, business directory, drive thru directory, and monthly community events calendar.
Special Needs Family Center of Children's Hospital of Wisconsin is a good resource to check out periodically. You may visit the Web site or visit in person. The center is a wonderful place to find the information and support from friendly and knowledgeable people, plus the events hosted by the center are not to be missed. Many SB families are already taking advantage of all the great things happening at the Special Needs Family Center.
StudioWorx Offiicial photographer of the Sprint for Spina Bifida, Darryl Adamczak.
Wisconsin Council on Children and Families: The mission of the Wisconsin Council on Children and Families, WCCF or the Council, is to ensure that every child in Wisconsin grows up in a just and nurturing family and community. The Wisconsin Council on Children and Families was established in 1881 as the Wisconsin Conference on Charities and Corrections. For well over a century, the organization has focused on improving conditions for families and children through policy change, expanded public investments and public education that lead to improvements in outcomes and practices in the delivery of publicly funded health care, education, workforce development and social services. The Council is a private, non-profit, non-partisan statewide organization with offices in Madison Wisconsin.
Wisconsin Department of Health and Family Services
Wisconsin Facets provides many services to help parents and other support and enrich the lives of their children. Some of the services they provide include: Information and referral, workshops, Individual assistance for challenging situations, support for mediation, support groups, and parent leadership development.
Wisconsin Medicaid: This link provides you a "Who to call" sheet for Wisconsin Medicaid and BadgerCare HMO Programs.
Financial Links
The Ford Mobility Motoring Program offers financial reimbursement of up to $1,000 toward the cost of adaptive equipment for Ford, Lincoln and Mercury vehicles.
SHARE is a program that encourages nutrition and family togetherness for all people. They make this possible through very good, easy to prepare (recipes are right on the web site), and very affordable food packages that you can order each month and pick up in your own community. This is for all people of all economic levels.
United HealthCare Children's Foundation is now offering to support the needs of children with assistance grants for medical services not fully covered by health insurance. Parents and caretakers will be eligible for grants up to $5,000 for health care services that will help improve their children's health and quality of life.
General Information Links
The Disabled and Their Parents: A Counseling Challenge. Leo Buscaglia challenges special educators and health professionals to become more aware of the desperate needs that disabled persons and their families have for competent, reality-based guidance, and the resultant tragedy that occurs when their needs are ignored. The book stresses that the ultimate goal of counseling the disabled is to help them attain the greatest of all human challenges -- self-actualization. Learn more about occupational therapy, physical therapy and nursing books published by SLACK Incorporated.
The Disability is Natural Web site tells us that a green apple is more like red apples than different. An individual with a disability is more like people without disabilities than different. Apples are natural. Having a disability is a "natural part of the human experience" (as expressed in the U.S. Developmental Disabilities Act). The sun shines equally on all the apples in the bowl, and it's time for the light of inclusion, opportunity, freedom, and dignity to shine equally on all people— including people with disabilities.
Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with disabilities.
Kids Health this site is a wonderful easy to use site for adults and kids alike. There is information on everything from dealing with feelings and staying healthy to health problems. Also check out the page on Spina Bifida under Kids' Health Problems. This page contains an easy to understand explanation of Spina Bifida and its problems that young children will be able to understand.
New Horizons is a website that brings a multitude of disability-related resources together, covering such issues as housing, employment, education, independent living, legislation and more.
PACER Kids Against Bullying Children in second through sixth grades now have an entertaining, safe way to learn how to respond to bullying. PACER's new Kids Against Bullying Web site includes a cast of 12 animated characters, celebrity videos, kid videos, Webisodes, games, contests, stories, artwork, poems, information, and much more. The site is for all children. Children with disabilities are integrated throughout the website.
Tap the Potential Calendar showcases all the wonderful events and activities taking place each month in celebration of people with disabilities in our community.
United Spinal Association is a national disability rights organization dedicated to helping pass laws to help Americans with disabilities live independent lives.
Youthhood is a website designed to help teens with disabilities in transitioning to adulthood. The site is full of great information, activities, and helpful ideas for teens and adults who work with teens.
Medical Links
The Cecostomy Web site was designed to give the visitor a better understanding of what a cecostomy is, the steps in a cecostomy surgery and how to maintain a cecostomy. Other topics include: how the digestive system works, how to give an antegrade enema, the difference between a retrograde enema and an antegrade enema, and the importance of fiber and water.
Healthy men who report lower levels of the nutrient folate in their diets have higher rates of chromosomal abnormalities in their sperm, according to a new study by researchers at the University of California, Berkeley, and the Lawrence Berkeley National Laboratory.
Hydrocephalus Association's mission is to provide support, education, and advocacy to people whose lives have been touched by hydrocephalus and to the professionals who help them.
Nonverbal Learning Disorder wikipedia definition.
Learning Disabilities Association of America is the largest non-profit volunteer organization advocating for individuals with learning disabilities and has over 200 state and local affiliates in 42 states and Puerto Rico. LDA's international membership of over 15,000 includes members from 27 countries around the world. LDA provides information on Nonverbal Learning Disorders and has additional links on their resource page.
Spina Bifida Association Fact Sheets Developed as part of the SBA National Resource Center (NRC), these fact sheets provide in depth information on health and interest topics related to Spina Bifida.
Sports and Recreation Links
Extreme Chairing provides information on extreme wheelchair sports to help enable people to break free from the stereotypical barriers imposed on people with disabilities.
Milwaukee Public Schools - Recreation Department adaptive sports programs are held at various locations throughout Milwaukee, primarily at MPS school buildings.
Songs of Love Foundation is a non-profit organization dedicated to providing personalized songs for children and young adults with chronic or terminal health conditions. Check out the web site to hear some of the songs that have been written specifically for individuals at the request of parents, guardians, or hospital staff.
Southeastern Wisconsin Adaptive Ski Program (SEWASP) provides adaptive alpine skiing lessons for people with disabilities in southeastern Wisconsin.
Wisconsin Amateur Hockey Association (WAHA) - Sled Hockey The Warriors are a Wisconsin sled hockey team. They will bring the equipment for your team to play in the sleds and compete. This a great team building event and an opportunity for your kids disabled or not! Check out video of a game.
Wheelchair Basketball:
Mad City Badgers is a Wisconsin competitive wheelchair basketball team in the Madison area.
Milwaukee Heat is a Wisconsin competitive youth wheelchair basketball club. No website is available at this time for the team. Contact: Jim Zomchek, Adaptive Sports Coordinator, (414) 647-6043. E-mail: zomcheja@milwaukee.k12.wi.us
Wheelin' Wizards is a Wisconsin competitive youth wheelchair basketball club.
Wisconsin Warhawks, University of Wisconsin - Whitewater wheelchair basketball team. UW-Whitewater also provides a summer wheelchair basketball camp. Go to http://www.uww.edu/conteduc/camps/wheelchair_bball.php.
Travel Links
Society for Accessible Travel and Hospitality (SATH) provides valuable information on traveling with a disability. Along with general information for traveling with a disability, this site also has a link to many airlines' disability information pages, helpful article, and travel regulations and restrictions.
Welcome H.O.M.E. (House of Modification Examples) Bed & Breakfast is a fully accessible bed and breakfast in beautiful Newburg, WI. This home was designed as an example of barrier free living for persons with physical disabilities. Visit Welcome H.O.M.E. as a vacation destination and/or as way to get ideas for making your home more accessible.
When We Travel is a vacation and trip planning web site that gives you the power to search for specific vacation and travel destinations, tourist attractions, activities, restaurants, hotel accommodations, and airfare based on your unique requirements. The site even includes tips on finding truly accessible hotel accommodations.