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Do you know what the

Spina Bifida Association’s branded color is?

 

It is TEAL (PMS320).

It is the green/blue color.

 

 Help organize family

and friends to wear

teal and start getting people to recognize our organization's color.

 

In the News

Welcome to the In the News page of the SBAWI web site. Please visit this page often to learn more about ways we are making a difference in the lives of Wisconsin individuals and families affected by Spina Bifida. If you have any questions about our news releases, the SBWins Newsletter, or the Spina Bifida Association of Wisconsin, please call Lori Swendrowski, Executive Director, at 414-607-9061.

 

Click here for the email updates from May 19, 2008. Contact us at sbawi@sbawi.org to receive email updates.

 

SBAWI has MySpace, www.myspace.com/sbawi, and Facebook webpages!

 

 

SBWins

SBAWI’s newsletter SBWins is published bi-monthly. Past issues may be available at the SBAWI Office. Your comments or ideas for SBWins are always welcome.

 

May-Jun 2008

Mar-Apr 2008

Jan-Feb 2008

 

To receive future copies of SBWins, please fill out a membership form and send it to the SBAWI office.

 

Promote your product or service with an advertisement in SBWins!

Advertising Rate Sheet


SBAWI receiving national branding award in 2008! Executive director, Lori Swendrowski, will be receiving the award at the 2008 national Spina Bifida conference in Tuscon, Arizona in June.

SBAWI  receives two national awards in 2007!  First place awards were received at the SBA National Conference for the Chapter Newsletter award and Community Outreach - Commerical Produced award. Pictured (left) accepting the awards from Douglas Sorocco, SBA Chair, are (left) Karen Rauen, M.S.N., RN, C.N.S., TEAM program coordinator and (right) Lori Swendrowski, executive director.

A special thank you is extended to our former executive director, Rita Flores, for all her hard work to achieve these awards.


Local Wheelchair Athlete Enjoys Success
WITI - Channel 6 (FOX 6) (May 13, 2008)
Fourteen years ago, Trey Roy was born with Spina Bifida. He's doing something that is blowing people away. FOX 6's Tim Van Vooren brings you his story.

 

Formerly Conjoined Twins Doing Better Than Expected

WISN - Channel 12 (May 11, 2008)

Two years after they were separated, Sheboygan's formerly conjoined twins are doing better than most expected. WISN 12 News' Toya Washington checked in with the Shaw family and twins, Mateo and McHale.

 

Genetic Abnormalities In Sperm Linked To Dietary Folate Intake, Study Shows

  ScienceDaily (Mar. 20, 2008)

Healthy men who report lower levels of the nutrient folate in their diets have higher rates of chromosomal abnormalities in their sperm, according to a new study by researchers at the University of California, Berkeley, and the Lawrence Berkeley National Laboratory.

 

Wisconsin "Warhawks" Wheelchair Basketball

Produced in association with the University of Wisconsin Whitewater on Storybridge TV.

Interviews of the coach, Matt Scott and Jay Baker.

 

Wisconsin "Warriors", Sled Hockey Team, featured in the Milwaukee Journal Sentinel

3-31-08 - New Wisconsin sled hockey team feature article. More information on the team can be found on the Related Links page of the website under Sports and Recreation.

 

Mellencamp Speaks About Spina Bifida During Rock and Roll Hall of Fame Induction Speech

(Video correction: Spina Bifida is not a disease, it is a birth defect.)

 

SBAWI staff wins B93.3 "Panera Lunch Break"

2-14-08 - Ellen from 93.3FM visited the SBAWI office and dropped off lunch items as part of the Panera Lunch Break. It was a pleasure meeting Ellen. There was so much food that  SBAWI was able to share it with other office people in the building. Thank you B93.3!

 

Nike Commercial Featuring Paralympian, Matt Scott

12-27-07

U.S. Paralympian and University of Wisconsin Whitewater student Matt Scott will be featured in a Nike commercial which is set to air on New Year’s Eve and New Year’s Day. The spot is themed “No Excuses,” and is designed to encourage people to get off the couch and get healthy.

The commercial will begin playing at 11:30 p.m. E.T. on ESPN and MTV on Dec. 31st and will continuously air throughout the early morning. On New Year’s Day, the commercial will air continuously on Fox, ESPN, ESPN2 and on MTV, beginning with the Cottonbowl at 8:30 a.m. E.T. on Fox, the NFL Network, BET, The Comedy Channel, FUSE, ABC Family and others.


"Overcoming a disability and striving for athletic excellence is certainly not for the weak," Scott said. "I am proud I was chosen to represent disabled athletes and show that we do not make excuses."


 

The spot can be viewed on You Tube at www.youtube.com/watch?v=obdd31Q9PqA.

 

Matt also appeared on WTMJ-4 The Morning Blend Show on Thursday, January 3, 2008!

 

 

Mellencamp New Face of Canadian Spina Bifida Org.

12-2-07 - Winnipeg Sun - Sun Media

 

With Independence Comes Responsibilities

9-15-07 - An exciting update on the Tim Krahling story.

Contact the SBAWI office for a printed copy.

 

Trying Life on for Size

9-2-07 - http://www.chicagotribune.com/features/magazine/chi- mxa0902magspinasep02,0,4480951.story

 

TMJ4 - Morning Blend

8-3-07 - Sarah Mueller, 2007 Honorary Chairperson, and Lori Swendrowski, Executive Director, were interviewed on the Morning Blend television show to raise awareness about Spina Bifida and to promote the 14th Annual Sprint for Spina Bifida.

http://www.themorningblend.com/NewsArticle/tabid/1474/xmid/13470/Default.aspx

 

WMYX Radio Interview

7-29-07 - Heather Moore and executive director, Lori Swendrowski

 

Ten Thousand Chocolate Bars Help Raise Awareness of Spina Bifida and its Prevention

4-11-07 ¾ When staff from the Spina Bifida Association of Wisconsin, Inc. learned that CocoaVia™, a new heart healthy chocolate bar from Mars, Inc., has 15% of the daily value of folic acid, a discussion began on ideas on how to use this information. A donation of ten thousand chocolate bars soon followed.

 

In a Child's Best Interests: The Tim Krahling Story

1-28-07 - 2/4/07 ¾ In an eight-part series, the Journal Sentinel tells the story of Tim Krahling, whose birth nearly 20 years ago spurred a debate over the rights of parents and society to care for a child born with severe abnormalities.

Contact the SBAWI office for a special edition printed copy.

 

Teens With Spina Bifida Reach Out to Help Guatemalan Families

10-06-06 ¾  The Spina Bifida Association of Wisconsin, Inc.’s Teens and Mentors (TEAM) Program participants are conducting a school and medical supply drive to help families in Guatemala affected by Spina Bifida and other disabilities. The supplies will be distributed to needy families through the Transitions Foundation of Guatemala, an organization that mobilizes Guatemalans with disabilities to lead healthy and productive lives.

 

SBA, The National Council of La Raza, Gruma and Wal-Mart Announce Unprecedented Effort to Fight Spina Bifida

07-11-06 ¾ The Spina Bifida Association (SBA), the National Council of La Raza (NCLR), Wal-Mart Stores, Inc. and GRUMA S.A. de C.V, announced today during NCLR's 2006 Annual Conference their joint effort to help fight Spina Bifida. Through this joint effort, GRUMA, one of the world's largest producers of corn flour and tortillas, has begun researching and conducting product testing with the goal of enriching its corn products with folic acid in the U.S. by the end of 2006. This initiative has the potential to reduce the incidence of Spina Bifida among all babies by 70 percent by helping increase the intake of this nutrient among women.

 

13th Annual Sprint for Spina Bifida to Take Place on August 12, 2006

07-07-06 ¾  The 13th Annual Sprint for Spina Bifida, a 5k run/wheelchair race and 2 mile walk, will be held on Aug. 12, 2006 at Mount Mary College beginning at 9 a.m. The event will benefit the Spina Bifida Association of Wisconsin’s programs for children and adults with Spina Bifida, outreach services, summer camp funding and educational conferences.

 

Tissue-engineered Autologous Bladders for Patients Needing Cystoplasty

04-04-06 ¾ The results of a study on bladders grown from the patient's own tissue and successfully implanted in seven children and teens with Spina Bifida were published in the British journal, The Lancet. SBAWI reminds readers that the results of this study are preliminary and there is still much research ahead before this this type of tissue engineering becomes a common treatment.

 

 
 

For more information, please contact us:

Spina Bifida Association of Wisconsin, Inc.
830 N. 109th St., Ste. 6, Wauwatosa, WI 53226

Phone: 414-607-9061
Fax: 414-607-9602
E-mail: sbawi@sbawi.org


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